My Malignant Melanoma
Seanty's experiences with Metastatic Malignant Melanoma. Part of www.mymalignantmelanoma.com. Email us direct at help@mymalignantmelanoma.comMonday, 25 January 2010
New Stories
We have new melanoma stories from Caroline, Tessa and Rory. Stories from other melanoma patients are most welcome.
Labels: melanoma stories
Wednesday, 13 January 2010
Sunbed ban- more to MM than tanorexia
A ban on under-18s using sunbeds moves closer in the UK, with government support, as reported in the media. This is a good idea, backed by CRUK.
It would however be nice if they could do a bit more to make the public aware that whilst it may be true that UV causes non-melanoma skin cancers, the evidence that it causes melanoma at all is not that conclusive, and the evidence that it causes all melanoma is entirely absent.
Being told your cancer if a lifestyle choice is bad enough when if was probably caused by some "choice" like smoking, but when it is clear that a lot of melanoma is NOT caused by UV exposure, melanoma patients can get the message that they deserve to get cancer.
I've never been on a sunbed or deliberately sunbathed in my life, just like many MM patients.
It would however be nice if they could do a bit more to make the public aware that whilst it may be true that UV causes non-melanoma skin cancers, the evidence that it causes melanoma at all is not that conclusive, and the evidence that it causes all melanoma is entirely absent.
Being told your cancer if a lifestyle choice is bad enough when if was probably caused by some "choice" like smoking, but when it is clear that a lot of melanoma is NOT caused by UV exposure, melanoma patients can get the message that they deserve to get cancer.
I've never been on a sunbed or deliberately sunbathed in my life, just like many MM patients.
Saturday, 9 January 2010
An Oasis of Healing
After hearing about the legal threats made by "An Oasis of Healing", seemingly on behalf of its founder Thomas Lodi, a fellow blogger thought it would be worthwhile to look into what "An Oasis of Healing" get up to, and it makes interesting reading. Have a look.
And then there's this.
It appears that threatening me has just spread criticism of your boss from my humble site to those with a far higher readership and Google rankings, and made you famous as a person who writes threatening letters to cancer patients for a living. I believe this is known as the Streisand effect.
That's quality marketing, Shayla!
And then there's this.
It appears that threatening me has just spread criticism of your boss from my humble site to those with a far higher readership and Google rankings, and made you famous as a person who writes threatening letters to cancer patients for a living. I believe this is known as the Streisand effect.
That's quality marketing, Shayla!
Labels: Shayla McCallum, Thomas Lodi
Friday, 8 January 2010
Threats....
I received the following threat of legal action today:
Hello,
I am contacting you regarding a blog you have posted that contains information about Dr Lodi that has never been verified.
We are requesting that you remove this blog immediately because you are slandering his name without any proof of your accusations.
I realize that you have your blog linked to an article posted in the Arizona Republic but if you look further into the charges that were brought against Dr Lodi you will see that they were never substantiated.
Please let me know when this blog has been removed.
If you do not remove the blog we will be forced to take legal action against your association.
Thank you in advance for your corporation in this matter.
Shayla McCallum
Director of Marketing
An Oasis of Healing
www.anoasisofhealing.com
Office: 480-834-5414
Direct: 480-834-5426
210 N Center Street
Suite #102
Mesa, AZ 85201
HIPPA CONFIDENTIALITY AND PRIVACY NOTICE: The information contained in this e-mail is private and confidential. It may contain Protected Health Information deemed confidential by HIPAA regulations. It is intended only for the use of the individual named above, and the privileges are not waived by virtue of this information having been sent by e-mail. Any use, dissemination, distribution or copying of the information contained in this communication is strictly prohibited by anyone except the named individual or that person’s agent. If you have received this e-mail in error, please notify us by telephone 480-834-5414 and via e-mail to shayla@anoasisofhealing.com immediately purge this e-mail. Thank you.
DISCLAIMER: The information contained in this e-mail is for educational purposes only. These statements have not been evaluated by the Food and Drug Administration and are not intended to diagnose, treat, cure, or prevent any disease; and any product mentioned in this e-mail is not intended to diagnose, prevent, treat, cure, or prevent any disease. Furthermore, the information provided hereinabove comes without any warranty whatsoever. Use it at your own risk. Just because a product, program, book, or service, etc. is mentioned hereinabove does not mean that that we endorse or approve of it. All the other standard disclaimers also apply.
I have asked them to confirm which allegation they are objecting to, it is all true to the best of my knowledge, though I am always willing to learn.
Labels: An Oasis of Healing, Director of Marketing, Shayla McCallum, Thomas Lodi
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