Seanty's experiences with Metastatic Malignant Melanoma.
Part of www.mymalignantmelanoma.com.
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I've heard nothing from fellow What Now posters for a while on promotion of snake oil on What Now, so I had a look just now to see how effectively it is being controlled. Not very, I'm afraid.
A quick check (simply by putting "alternative" into the site's search box) shows a great deal of uncontradicted false information on such things as AHCC
capsules, apricot kernels
, the cancertutor
quackery promotion sites, black propaganda
against Ben Goldacre and Quackwatch, Gemm therapy
, Jan de "Vriers"
powders, Broncosol (and apricot kernels again)
, "Trying any alternative medicine you can find
", Direct promotion (complete with weblink) of foreign sites selling quack cancer cures
, yet another site
promoting quackery with false claims, Mistletoe treatment
. These are just from the first six pages of 99, and I've not even included all of the other pages where false claims have some sort of response, however weak or unconvincing.
What are those of you who told me that the site didn't need someone to keep an eye on those who promote quackery to the desperate going to do about it?
Corrections to the What Now misinformation:
AHCC capsules are not "known to help prevent cancer returning" contrary to poster's claims. Their supposed active ingredient is maitake
mushrooms. To quote the American Cancer Society "There is no convincing clinical evidence to date in available peer-reviewed medical journals reporting that the maitake mushroom is effective in treating or preventing cancer in humans". The same is true of Shiitake.Apricot kernels
are the thin end of the laetrile wedge. They contain amygdalin, a form of cyanide with no more anti-cancer effect than any other form of cyanide.
Cancertutor promotes every brand of cancer quackery with lies. Best to read Quackwatch's special message to cancer patients
The propaganda against Ben Goldacre
reproduced on What Now is unfounded. The What Now poster has uncritically reproduced the baseless self-published rantings of an anti-vaccination campaigner, and the internet smear campaign of "an entity whose purpose is to assist "alternative" health practitioners faced with regulatory action, criminal prosecution, or other matters that threaten their financial well-being" as it says in the pending libel case
against them. Macmillan are most unwise to allow their site to repeat this libellous claim.
The claim to cure incurable cancers made for Gemm therapy
is only one of a range of fantastic claims made by its inventor for the technology he named after himself, including safe nuclear power, and psychic abilities. The only evidence for the technique ever published appears to be in what may be the world' least credible journal, the "Journal of Frontier Perspectives", alongside stuff about Alien abductions, UFOs, Tarot readings, and dowsing.
Jan de "Vriers" powders- Jan de Vries is a naturopath. The US authorities concluded as far back as 1968 that "Naturopathic theory and practice are not based upon the body of basic knowledge related to health, disease, and health care which has been widely accepted by the scientific community. Moreover, irrespective of its theory, the scope and quality of naturopathic education do not prepare the practitioner to make an adequate diagnosis and provide appropriate treatment."Naturopathy is horseshit
Broncosol is an extract of broccoli, sprouts and watercress which sell at around £1 per tablet. Do I really need to point out that there are no vegetables which cure cancer? Yes? Really? OK, broccoli does not cure cancer
Alternative cancer.net- see Cancertutor/CanceractiveMistletoe
treatment comes from a religious approach to medicine invented by Rudolph Steiner, a philosopher with no medical qualifications, who thought amongst other things that the heart is not responsible for circulating the blood. It has no effect on melanoma other than possibly promoting spread to the brain